Life with Endometriosis, Documented.

Building the World’s Library of Endometriosis Experiences.

Research helps us understand endometriosis.
Stories help us understand what it’s like to live with it.
Endo Library exists to preserve those stories.

For people living with endometriosis.the people who love them.researchers.anyone who wants to understand the lived experience of endometriosis.

SHARE YOUR STORY

EXPLORE STORIES

How it works

Share Your Story

Share your endometriosis journey through the story form. There are no live interviews.

Take Your Time

Answer only what you’re comfortable sharing. Every question is optional.

Respond in text, at your own pace, from anywhere in the world.

Become Part of Endo Library

Every submission is read and shared thoughtfully as part of Endo Library.

Share at your own paceThere is no rush or expectation. Take your time and share as much or as little as you’re comfortable sharing.
Your story remains yoursYou own everything you share. Endo Library exists to preserve your story, not take it from you.
You choose how you’re representedShare your story anonymously or be credited, whichever feels right to you.
Update your story over timeExperiences change over time. Add an update to your story whenever you’d like, and it will appear after your original story.
Edit or remove your story at any timeYour story can be updated or removed whenever you choose.

Share Your Story

Take Your Time

Become Part of Endo Library

Recent Stories

It took 13 years to get diagnosed. No GP believed me. I ended up paying privately to have a consultation with a specialist. GP’s told me loads of insulting things throughout this period. Like my periods wouldn’t be painful if I gained weight or it was just normal and I needed to get used to it.

The one thing I can say is that endometriosis is never really gone. You can get the surgery, you can have some relief, but endo is never really gone. Depending on your body, it can grow back in four months, it can grow back in 10 years, you never know.

Although various symptoms come and go weekly, the daily chronic fatigue is relentless, feeling like I’ve been drugged nearly every morning. I spend more time thinking about wanting to just go home and lay down than anything else throughout my day.

At its worst unbearable. You would do anything to make it stop. Like someone ripping your insides out. Stabbing in stomach stabbing up the anus. Feeling sick. Hot sweaty. Like bad period pain with indigestion and a kidney infection at the same time. Rolling around on the floor.

Dr said he had never seen so much endo in a person my age. I started my period at 14 I was diagnosed at 16.

Your Story Matters. 🤍